It's DONE

We raised it, we saved it. I have a metal neck, i'm recovering from the operation and I'll never be able to thank everyone enough, but it starts with a thank you. So thank you. To absolutely everybody, with help, thoughts, intent, action, it all means the world.

Donate to the Save Sams Spine Trust Fund

Monday 29 November 2010

Digital Cleanout

It's that time. I took a sojourn through my laptop specs and decided that with a few choice purchases, some ram and perhaps a new processor?? Or just the ram..bring it to 4gig or more. I have a 64 bi supporting processor so can upgrade to Windows7 64 bit no problem, add some epic ram and I'll have a veritable brand spanking new laptop, perfect for some live music application.

Laptop

Bibliotecheques library bastards fangtangort.

I don't like you.

What is my life, full of heavy handed waste and never looking back scourging.
breath and breath again, you lift, but never further.

Thursday 11 November 2010

My prep for the private consult with the posh spinal expert..bleeeeurgh

Mr Krishna Consult

ONLY ANSWER THE QUESTIONS HE ASKS YOU IN AS FEW WORDS AS POSSIBLE. IF HE ASKS YOU A YES/NO QUESTION, JUST RESPOND YES/NO. IF HE WANTS MORE INFORMATION HE WILL ASK YOU FOR IT.

HE HAS READ YOUR FILE, PROBABLY IN DEPTH BEFORE YOU GO IN THE ROOM…..HE WILL KNOW ABOUT SHEFFIELD, AND EVERY SINGLE REFERRAL AND EVERY SINGLE LETTER OF COMMUNICATION WILL BE IN YOUR FILE….IT IS NOT YOUR JOB TO TELL HIM. YOUR JOB IS TELL HIM HOW YOU FEEL. IF HE NEEDS ANY INFORMATION HE WILL ASK YOU FOR IT.

If he asks you to tell him what’s been going on you can tell him this but he probably knows it already. This is all you need to say if asked:

• Nearly 2 years ago I woke up with an extremely sharp pain in my neck and a strange feeling in the right arm. Over the next two weeks the pain increased greatly and I began to develop numbness weakness and pins and needles in my right arm mostly in the thumb and first finger

• My GP referred me to Sheffield Neurosurgery where they diagnosed a disc prolapse on MRI.

• After this I was booked in for surgery, however after review the operation was put back for six months whilst first trying conservative treatment.

• My symptoms have got worse and worse over 2 years even though the MRI’s etc have shown Improvement.

• Around June this year Sheffield discharged me from their clinic stating they could no longer perform the disectomy that I had been booked in for twice.

• My only treatment now under the NHS is under the pain clinic who are failing to manage my pain.

HE WILL ALREADY KNOW YOUR SYMPTOMS BUT IF HE ASKS TELL HIM EVERYTHING SUCCINTLY:
• Severe Pain in the neck, worsened by any movement
• Twitches in thumb and finger, less in the arm, occasionally the right leg
• Numbness and Pins and needles in the arm,
• Sprained ankle feeling in the neck,
• No movement of head for causation of pain.
• Shooting pains down the arm.
• No sleep.
• Skin Problem in extremities, skin thickening, peeling.
• Migraines
• Burning pain in skin around neck on the back
• Difficulty swallowing.

The most important thing out of all of this- even if you don’t say another word- you need to say to him is that you just can’t stand it any more….These problems have an extreme impact on my life, the physical nature of it leaves me unable to be independent, live a full life or work due to the extreme pain and most physical movement of any longevity leave me in greater pain and with less mobility. I understand that some of these symptoms are due to the meds that I’m on and not the condition itself and my biggest aim is to not be as dependent as I am now on medication.

The above should take no more than about 2 minutes……by that time he will be bored. Keep him interested, ask him questions and make him work for his money………………………………….

WRITE THIS LIST DOWN…… AND ONLY ASK THEM IF HE’S NOT ALREADY BROUGHT THEM UP…...

• What is it that you are able to do for me?
• what can you do to manage this problem.?
• If he can do something….what is the next step?
• What is the time frame?
• What do I need to do before I next see you again?

• What are the full costs of the treatments?

• What are potential funding options (NHS Provision etc)

• If you can’t do anything what is my next step as I feel like you’re my last option (if this happens it is not the end of the world but don’t leave his office until you get an answer)….what do you recommend?

• I need you to be honest with me…..is this something I need to learn to live with and if so how?

• What are the risks involved in treatment?

• What would my quality of life be after treatment?

• If you will see him again…..If I have any questions between now and then who can I speak to?

• If he doesn’t do it already ask him to summarise/you summarise everything you have gone over thoroughly before you leave the room to check you have everything straight in your head.